EYES
I am writing this poem, through the eyes of another, My carer, husband and significant other....
I am writing this poem, through the eyes of another, My carer, husband and significant other....
I have never felt so ugly, or felt so alone, As I sit here on my sofa, my mind begins to roam....
I never thought I would, compare myself to a toy, Toys should be happy, and fill your heart with joy!...
Sometimes I feel like I'm trapped in a cage, Sometimes I'm happy, other times I rage....
One thing we know for sure, everyone is going to die Some are taken too soon, and nobody knows why!...
Everyone grieves in different ways, Some at night and others in the day....
Adapting to new changes, is something we all do But adapting to MND change is really something new...
You never think, as you age, one day you'll need care We all take for granted, that good health is always there...
There is not enough space to list all I miss It's the simple things, a hug and a kiss...
When diagnosed, you go down a black hole A glimmer of hope is Riluzole....
So how was the cruise, people will say It's meant to be a nice holiday...
How is it possible, how can it be That I have been diagnosed, with MND....