MISSING

Video Performance


A performance of “MISSING” by Sarah Edinburgh

There is not enough space to list all I miss It's the simple things, a hug and a kiss I miss being able to speak with my voice Instead of machine, but I don't have a choice I can't use my hands and can't stroke my cat I can't scratch an itch, just imagine that I'm longing to dance and longing to sing I miss it so much, as that was my thing I would love to walk and get some fresh air It's just not the same being in my wheelchair What I would give to go out for some meals To feed myself, I forgot how that feels I wish I could hold a cup of tea in my hand Instead of pipette or straw, which I really can't stand I miss independence and driving my car Just round the block, I don't need to go far I can't wipe the hair that may fall in my eye Or wipe away sneeze, or swot the damn fly When I go to bed, it has to right As I'm stuck in position all through the night When I look in the mirror I hate what I see I feel its a stranger looking at me I miss doing my makeup and styling my hair Painting my nails without needing care I miss going to work and being able to write Using a keyboard and able to type Turning the page on a favourite book So many things MND has just took I wish I could still, hang washing to dry Hoover and dust, cook dinners to try I hate that I can't just pop to the shop Or mooch around town and shop till I drop It's just not fair, I can't use loo on my own Or text and use, apps on my phone Clothes and shoes that I love, I can no longer wear Too hard to get on and people will stare I wish I could book, trips like before But I need so much stuff, it's too much of a chore I hate that I'm jealous of people's good news I really miss planning things that amuse I wish I could help people in the way they help me But body says no, what will be, will be So next time you think your life's in a muddle Think of this rhyme where life's really a struggle.