MISSING
Video Performance
A performance of “MISSING” by Sarah Edinburgh
There is not enough space to list all I miss
It's the simple things, a hug and a kiss
I miss being able to speak with my voice
Instead of machine, but I don't have a choice
I can't use my hands and can't stroke my cat
I can't scratch an itch, just imagine that
I'm longing to dance and longing to sing
I miss it so much, as that was my thing
I would love to walk and get some fresh air
It's just not the same being in my wheelchair
What I would give to go out for some meals
To feed myself, I forgot how that feels
I wish I could hold a cup of tea in my hand
Instead of pipette or straw, which I really can't stand
I miss independence and driving my car
Just round the block, I don't need to go far
I can't wipe the hair that may fall in my eye
Or wipe away sneeze, or swot the damn fly
When I go to bed, it has to right
As I'm stuck in position all through the night
When I look in the mirror I hate what I see
I feel its a stranger looking at me
I miss doing my makeup and styling my hair
Painting my nails without needing care
I miss going to work and being able to write
Using a keyboard and able to type
Turning the page on a favourite book
So many things MND has just took
I wish I could still, hang washing to dry
Hoover and dust, cook dinners to try
I hate that I can't just pop to the shop
Or mooch around town and shop till I drop
It's just not fair, I can't use loo on my own
Or text and use, apps on my phone
Clothes and shoes that I love, I can no longer wear
Too hard to get on and people will stare
I wish I could book, trips like before
But I need so much stuff, it's too much of a chore
I hate that I'm jealous of people's good news
I really miss planning things that amuse
I wish I could help people in the way they help me
But body says no, what will be, will be
So next time you think your life's in a muddle
Think of this rhyme where life's really a struggle.