Latest poem
SEVEN
I've written many poems, about life with MND, I'm compelled to write another, for a man who's a hero to me .
Read poemPoetry by Jaki Jackson
Life with MND
My MND Journey in Poetry
A collection of poems, written entirely through the use of eye-tracking software, that explore the daily challenges of living with Motor Neurone Disease.
Now live · TV & radio campaign
Life Stripped Away
Jaki features in the MND Association's nationwide TV and radio campaign, sharing the reality of living with Motor Neurone Disease (MND).
Most Recent Poems
CHECKOUT
I'm ready to checkout, of the MND Hotel, Needless to say, my stay did not go very well.
Read poemREMEMBER
I wish I could remember, the last food I ate, Where did I eat it, and what was on my plate.
Read poemFESTIVE
I used to love Christmas, my favourite time of year, So please forgive me, for not feeling seasonal cheer.
Read poemHOSPITAL
Oxygen is dangerously low, so it’s hospital for me, The Ambulance came super quick, for my trip to A & E!
Read poemFRIENDS
I thought my poem ideas, had come to an end, Then I thought of a word, that word is friend.
Read poemUpdated October 2026
What's New
- Now live: Jaki features in Life Stripped Away, the MND Association's nationwide TV and radio awareness campaign. Watch the TV advert.
- New poem added: SEVEN.
- New video performance added to FESTIVE by Dr Colette Ridehalgh.
- New video performance added to REMEMBER by Emma Lindfield.
- New video performance added to CHECKOUT by Philip Andrews.
- New video performance added to FRIENDS by Mel Stoner.
- New video performance added to EYES by Andy Stoner.
More About Jaki
My MND journey began in October 2021 when I noticed my handwriting was getting really messy. Fast forward to 25 August 2022 when I was officially diagnosed, and having just got married in December 2021, my hopes and dreams were shattered and my world fell apart.
These poems are windows into my daily experiences, challenges, and moments of frustration having to deal with and adapt to my condition. I hope they can provide insight, comfort, and connection to others on similar paths. I have relied on eye-tracking software to create these, which has allowed me to continue expressing myself despite the harsh physical limitations of MND.
Jaki's story was recently featured on the MND Association website. Read Jaki's story.
How My Poetry Journey Began
Read my first poem, BRUTALThese poems have allowed me to share my experiences, thoughts, and feelings through verse; trying to find hope and something to smile about each day, despite the brutal challenges of this cruel condition.
I originally wrote my first poem, BRUTAL, in mid 2024. It was well received and marked the beginning of my journey into poetry as a means of expression. Brutal went on to be used in two match day Rugby programmes. To find out more about this, see my page on raising awareness.
Get in Touch
I'd love to hear from you if you'd like to share your thoughts or connect.