DRUGS

When diagnosed, you go down a black hole A glimmer of hope is Riluzole. I had a reaction, which was bad My hope was gone, which made me sad. Next I looked further away And found some hope in the USA. After many emails too and fro We took the risk, and gave it a go. The drug was AMX OO 3 5 That we hoped would help keep me alive. Long assessment and prescription was done My journey of hope had finally begun. The pharmacy was miles away My amazing Steve drove all day The drugs were finally in my hands Everything had gone to plan. We worried about taking them on the plane But all went well and I can't complain. 10 big tablets a day is not much fun But if I want it to work, it must be done. We travelled 4 times to get some more Until MND affected my jaw So I took the tablets mixed with a shake It tasted so vile my body would quake And then some news for which we feared The drug failed trials and was no longer here I couldn't help feeling a bit of contempt At the dreams I lost and money I spent Not giving up, I looked for a trial Aware that the process took quite a while An appointment at Kings was made with haste Knowing that I had no time to waste Then Brighton agreed to see me too I'm feeling happy with hope renewed A number of blood tests were taken to see If the trial would be good for me But nothing ever goes to plan I can't help thinking how unlucky I am One blood result came back too high All I want to do is sit and cry Not to be beaten, the test is redone Finding my veins is never much fun Bloods are in range, I'm happy to say Let's hope nothing else gets in the way I go to London for assessment at King's Eager to see what the appointment brings A few hours pass, with test after test Exhausted now and in need of a rest I'm told to rule out 2 trials out of 3 As the tests have shown there not suited to me But I am approved for trial MND Smart This makes me happy, I can't wait to start So the courier brings 2 bottles to me Will it work, I'll wait and see One thing I would like to know Am I taking the drug or just placebo For now, this is the end of my tale Will I succeed or will I fail But I will keep hoping for a cure Until then, I can't do anymore.