CHANGE

Adapting to new changes, is something we all do But adapting to MND change is really something new First it was a foot up, to stop me tripping up! A bent fork and spoon, and special drinking cup. I stacked it in the bedroom, and knocked myself clean out! A walking stick is needed, to that there is no doubt. My legs are quite unsteady and I trip out my front door Stitches in my forehead, and I'm thinking I need more. As my legs are getting weaker, I can no longer make the stairs A hospital bed is delivered, which fills me with despair! The walking sticks are gone, it's a zimmer frame for me I lose grip and stack it backwards, with a trip to A & E. So I get a wheelchair, to stop me falling down I don't really want to have it , and greet it with a frown. The wheelchair provided is too heavy for day to day So we buy a lightweight version, perfect for trips away. We are given a stair climber, to help for use outdoors But it's far too heavy and to use it is a nause! The equipment just keeps coming, to keep up with changes that occur! From bath seats to neck braces, my head is in a blur. The worst type of changes, are happening inside Some are quite obvious and impossible to hide I am feeding through a PEG tube, my voice is a machine There is no denying MND is cruel and mean I've not yet mentioned hoisting, massive bits of kit But we have to get them, I just hope that they will fit! First one in the bedroom, is fitted to the wall Second one is mobile and but it really isn't small As the disease progresses, I need another chair This will be the last one, it's way more comfy to be fair. The third hoist in the bathroom is the one I really love It stops me from drowning when I'm soaking in the tub. Amongst other things to get used to, and things I need to store Are nebuliser, mask and saline, plus medicines galore Suction machine and PEG food is all I can allow So until the next change happens, this is it for now